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this website has been built to the very latest web technologies and you are using an outdated browser. please upgrade your browser with either the latest version of microsoft internet explorer , google chrome or mozilla firefox to improve your experience. association for multiple endocrine neoplasia disorders home patients age 5 – 12 age 13 – 21 information men1 men2a men2b/3 fmtc sdh disorders pheo/para fipa acc mtc resources project rollercoaster support counselling service social media transition men passport videos events centres of expertise finance & insurance advice thyroid cns – macmillan over 21 information men 1 men 2a men 2b/3 fmtc sdh phaeo/para fipa acc mtc resources support counselling service social media men passport events thyroid cns – macmillan centres of expertise finance & insurance advice videos emotional support amend counselling service introduction to mindfulness mindfulness and men mindfulness faqs more information about mindfulness join research opportunities feedback usa useful links healthcare professionals amend medical advisors amend research fund amend awards order resources other ways we can help join fundraisers & supporters acknowledgements fundraising opportunities fundraising uk fundraising usa donate legacy information internships volunteer usa news amend shop contact us home patients age 5 – 12 age 13 – 21 information men1 men2a men2b/3 fmtc sdh disorders pheo/para fipa acc mtc resources project rollercoaster support counselling service social media transition men passport videos events centres of expertise finance & insurance advice thyroid cns – macmillan over 21 information men 1 men 2a men 2b/3 fmtc sdh phaeo/para fipa acc mtc resources support counselling service social media men passport events thyroid cns – macmillan centres of expertise finance & insurance advice videos emotional support amend counselling service introduction to mindfulness mindfulness and men mindfulness faqs more information about mindfulness join research opportunities feedback usa useful links healthcare professionals amend medical advisors amend research fund amend awards order resources other ways we can help join fundraisers & supporters acknowledgements fundraising opportunities fundraising uk fundraising usa donate legacy information internships volunteer usa news amend shop contact us home to the original information for kids on men support our team! yorkshire 3 peaks weekend challenge (29 june - 1 july, 2018) 2019 patient information day - book now about amend we are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our ‘family’. the aim of our website is to direct you as quickly as possible to our support services and to information you can trust on multiple endocrine neoplasia (men) types 1, 2, and 3, medullary thyroid cancer (mtc), familial medullary thyroid cancer (fmtc), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, familial isolated pituitary adenoma (fipa) and succinate dehydrogenase (sdh) disorders. who we are a short history the association for multiple endocrine neoplasia disorders (amend) is a patient group set up in 2002 to support and inform anyone affected by or interested in multiple endocrine neoplasia disorders and their associated endocrine tumours. amend is run by patients, for patients, and became a uk registered charity (no. 1099796) in 2003, converting to a registered charitable incorporated organisation (no. 1153890) from january 1st, 2014. amend reports to and is regulated by the uk charity commission. amend is affiliated with amend usa, a registered us 501c3 non-profit public charity (ein 90-0885351) which reports to the irs. back in 2002, men1 sufferers and co-founders, liz dent and her daughter emily fazal set up amend as they were concerned that, having been recently diagnosed with a rare condition, there was little information to be found regarding best treatment, and even fewer fellow patients with whom to be in contact to share experiences – a process that so many people find helpful. with the help of the amend medical advisory team, jo grey produced the first english language versions of our patient-aimed information books on men back in 2005. since then, amend has continued to find other innovative ways to help support and inform patients and their families and friends around the world. amongst these innovations is the men passport ; a portable record folder for keeping track of the complicated monitoring and treatment regimes involved in living with men. in 2008 jo grey became ceo and chair of the trustee board and continues to run amend today as ceo ably assisted by administrator, helen blakebrough and a committed band of patient, family and healthcare professional volunteers. jo grey, amend ceo helen blakebrough, administrator in 2008, membership of amend was made free to all, and in 2009, amend’s free counselling service for volunteers and members was launched. amend works hard forging and maintaining cooperative working alliances with other patient and professional groups around the world in order to ensure the best support possible for men and endocrine tumour patients. the charity believes strongly in investing in its growing band of volunteers and provides appropriate training wherever possible. if you are interested in starting a patient group in your country, amend has a programme to help you. aims of amend to improve the well- being of all persons affected by men and endocrine tumours by: providing support to patients and their families and friends; providing information about men and other relevant issues relating to genetic disorders, promoting a wider knowledge of men among the medical profession to assist in early and accurate diagnosis, and; assisting in future men research we are always pleased to hear from you so don’t hesitate to get in touch and see how we can help. how we are governed (uk) regulatory information as a uk registered charity (non-profit organisation), amend is regulated by the uk government’s charity commission and produces annual reports and accounts. it does not receive government funding. amend usa is affiliated with amend (uk) but is a us tax exempt 501(c)(3) non-profit public charity itself (irs number 90-0885351). if you are interested in being involved with this organisation, please do contact the main representative directly. board of trustees amend has a board of trustees (directors) which includes patients, healthcare professionals and other interested parties with specific qualifications. it is the board’s responsibility to set the organisation’s strategy and to ensure that the charity operates in compliance with the laws of the united kingdom. interested in becoming a trustee? just contact us for a chat! click on the individual links below to find out how our trustees enjoy and value their volunteer roles for more information on the roles and responsibilities of trustees, please visit the national council for voluntary organisations’ website induction and training is provided! click here to see our current trustee board, the amend uk medical advisory team and organisations that amend is a proud member of. who our sponsors are we are very grateful for all the wonderful support that amend has received over the years in either monetary or in-kind donations and sponsorship as well as individual fundraising. click here to see our current and past sponsors. annual reports & accounts as a uk registered charitable incorporated organisation (no. 1153890), amend must submit its report and accounts to the uk charity commission annually. amend was a registered unincorporated charity (no. 1099796) until it became a cio from 1st january 2014. you can view both our cio and our unincorporated charity summaries and annual reports & accounts on the charity commission website make a donation amend has a variety of ways to donate to show your appreciation for our work. donate now become an amend member membership if free so come and join our family. join us social media amend uses a number of social media channels to provide information and support. find out more latest news there’s always something going on at amend. check out the latest news view news latest video filmed main programme event sessions and other information. visit our youtube channel twitter feed @ellardsian @rdehospitals @exetermed congratulations!!! aww thanks! twitter.com/hormone_doc/st… from @endosocjournals - patients with men1 suffer from a fear of disease occurrence that is associated with a lower… twitter.com/i/web/status/1… retweeted by amend register now for @netsbasicsday - an amazing opportunity for trainees and consultants to learn more about the manag… twitter.com/i/web/status/1… retweeted by amend a new #research study looks at how feedback is gathered & used in the nhs, i've had the lovely job of animating the… twitter.com/i/web/status/1… retweeted by amend don't miss this new review on the use of pasireotide in the treatment of #nets from giovanni vitale et al.… twitter.com/i/web/status/1… retweeted by amend @accsupportuk twitter.com/imsr_uob/statu… new research from the university of tokyo, japan, investigating tumor suppressor functions of daxx in pancreatic ne… twitter.com/i/web/status/1… retweeted by amend to those who stand with me as i fight my #raredisease : "thank you for understanding when i cannot be there, even if… twitter.com/i/web/status/1… retweeted by amend we were delighted to host the first european dietetic group meeting, ding, dieticians with an interest in nets. aro… twitter.com/i/web/status/1… retweeted by amend information endorsed by members of this site complies with the honcode standard for trustworthy health information: verify here amend disclaimer privacy contact us information production find us on: facebook twitter amend registered charity number 1153890 | © 2018 amend design + build: gulp creative

URL analysis for amend.org.uk

https://www.amend.org.uk/patients/over-21/support/videos/
https://www.amend.org.uk/healthcare-professionals/amend-research-fund/
https://www.amend.org.uk/patients/ages-13-21/information/men-2b-3/
https://www.amend.org.uk/contact-us/
https://www.amend.org.uk/fundraisers-and-supporters/uk-legacy-giving/
https://www.amend.org.uk/patients/over-21/support/men-passport/
https://www.amend.org.uk/mindfulness/mindfulness-and-men/
https://www.amend.org.uk/amend-shop/
https://www.amend.org.uk/patients/research-opportunities/
https://www.amend.org.uk/patients/over-21/support/counselling-service/
https://www.amend.org.uk/patients/ages-13-21/information/pheo-para/
https://www.amend.org.uk/patients/
https://www.amend.org.uk/news/
https://www.amend.org.uk/fundraisers-and-supporters/fundraising-opportunities/fundraising-uk/
https://www.amend.org.uk/useful-links/
apps.charitycommission.gov.uk
ncvo.org.uk

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Error for "amend.org.uk".

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  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER uk.whois-servers.net

  ARGS amend.org.uk

  PORT 43

  TYPE domain

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2017.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED no

DOMAIN

  NAME amend.org.uk

NSERVER

  NS.MAINNAMESERVER.COM 79.170.40.2

  NS2.MAINNAMESERVER.COM 79.170.43.3

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